Highlights from the 2022 NORD Breakthrough Summit - National Organization for Rare Disorders

EveryLife Foundation for Rare Diseases

The main theme was partnership and panels discussed the importance of policy change

Conferences Archives - The Life Raft Group

Rare Disease Advocates and Supporters Share the Importance of Raising Awareness Ahead of Rare Disease Day 2023

Praxis Medicines (@PraxisMedicines) / X

News from MetabERN - MetabERN

Patient Registry - Association for Creatine Deficiencies

EveryLife Foundation for Rare Diseases

Knowledge-based approaches to drug discovery for rare diseases - ScienceDirect

Progeria Research Foundation, Charity Organization

National Organization for Rare Disorders' 2023 NORD Breakthrough Summit - Patient Worthy

Rareis Scholarship awards $405,000 to 81 rare disease patients in 2022 - EveryLife Foundation for Rare Diseases

Presentations Critical Path Institute

Drugs and pharmaceuticals - Cambridge Rare Disease Network